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About the Global Advocacy Alliance


Established in March 2022, the Global Advocacy Alliance is a global community of non-profit organizations and support groups who are committed to changing the way the world tackles rare diseases by collaborating to realize positive change. Together, members can connect, empower and inspire the rare disease community. 


Joining the Global Advocacy Alliance will allow non-profit and rare disease support groups to enjoy added benefits, high-touch communications from our Global Genes team, and more engagement with fellow Global Advocacy Alliance members at no cost.


To enjoy the life-time benefits of the Global Advocacy Alliance, your organization must be a support group, U.S. Foundation with 501(c)(3) status or international foundation/registered charity and offer rare disease information or support in one or more of the following ways: patient/caregiver support, healthcare provider education, public awareness and advocacy and/or research.

Completion of this form is a requirement for Global Advocacy Alliance membership and should be completed by an active member of the organization. 

If you have questions about this form or the GAA, please email us at global.advocacy.alliance@globalgenes.org.
Key Details





This response will be displayed on our website's list of GAA members.
Organization Contacts
Your Organization's Primary Contact




Your Organization's Secondary Contact




Warm Handoff

Organization Information
Shipping Address











The purpose of this question is to help guide the development of educational tools and resources that are relevant to organizations at different stages in their organizational journey. Information provided in this question may also be used in the grant review process to holistically evaluate your application.



Social Media Channels

Please input your social media LINKS, not the handles, in the boxes below. For example, input https://www.instagram.com/globalgenes/, not @globalgenes. Please ensure any links entered begin with “https://www.”


This information will be featured on Global Genes website along with your organization name and logo. Providing this information will allow visitors to the Global Genes website to easily access information about your organization. 











Your Organization's Patient Community










Ultra-rare diseases affect fewer than 6,000 individuals.







Areas of Work and Support









Miscellaneous




If you have questions about this form or the GAA, please email us at global.advocacy.alliance@globalgenes.org. 

Please view our terms and conditions.
Organizations with a for-profit status are not eligible to apply for the Global Advocacy Alliance.
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