Global Advocacy Alliance: Share Your Success

As a member of the Global Advocacy Alliance, you are part of a large community of organizations that want to share in your victories as an advocate for the rare disease community! Help us celebrate your organization’s work by sharing your success so that you may be featured in our monthly Global Genes blog!!

Examples of what you can share with us include:

Work in the community
Successful events
Organizational goals met
Partnerships & collaborations
Participation at summits, meetings, and speaking engagements

Please note that this submission is not to promote upcoming community events. You can share upcoming events at the Global Genes Event Hub!

Submission Information

First Name

Last Name

Organization

What diseases/disease areas does your organization support or represent?

Success Story

Story Title

Share the details of your success story (maximum 150 words):

Share a link to a corresponding Facebook or social media post (if applicable):

Image

Permission to Publish

By selecting “YES” you are granting Global Genes permission to use your story, photo, first name, organization name, on our website and publications, and as part of our ongoing programs and efforts to increase rare disease awareness:

YesNo

I consent to the collection and use of my personal data for the purpose associated with the Global Advocacy Alliance participants in the Global Genes Privacy Policy referenced within.

Contact Information