RARE Concierge Inquiry

First Name

Last Name

Email Address

Phone Number

Your Country

Your State

Is the patient of Hispanic, Latino, or Spanish origin?

YesNoUnknownPrefer not to say

What is the patient's ethnicity? (select all that apply)

AsianIndigenous or Alaskan NativeBlack or African AmericanMiddle EasternNative Hawaiian or Pacific IslanderWhiteOtherUnknownPrefer not to say

What is the patient's gender identity?

MaleFemaleNon-binaryOtherUnknownPrefer not to say

Patient's birth year (e.g., 2000)

Is the patient diagnosed?

Disease(s) of interest

Clinical Entity Id

If your disease(s) of interest are not captured in the dropdown above (e.g., CACNA1-related disorders), please enter here.

I am seeking information/resources about: (select all that apply)

Caregiver Support ResourcesClinical studies or researchDisability resourcesConnecting to others (e.g., patient advocacy organization(s))Financial supportFinding a doctor, specialist, or center of excellenceMental health supportRaising awareness for specific disease(s)

Which of the following best describe(s) you? (select all that apply)

Caregiver/Care PartnerHealthcare ProfessionalPatientPatient AdvocateOther

Other - Which best describes you?

How did you hear about Global Genes Patient Services?

Helen DeVos Children's Hospital - NICUCorewell Health Genetics ClinicAll In. RareGeneDxFamily, Friend or ColleagueAnother Patient Advocacy GroupGlobal Genes Email/NewsletterGlobal Genes Event or ConferenceGlobal Genes Social MediaGlobal Advocacy AllianceGlobal Genes WebsiteSearch Engine (e.g., Google)UnknownOtherRARE-X Program

Subject

Please provide us with any additional information that will assist us with addressing your unique needs.

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Contact Information