Symposium Details

Wednesday, September 3 - Thursday, September 4
Joseph B. Martin Conference Center
Harvard Medical School
77 Avenue Louis Pasteur, Boston, MA 02115

Are you attending as a representative of a Global Advocacy Alliance Member Organization?

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In order to develop tools to empower our diverse rare community, we ask participants to please select the response that best reflects their race and ethnicity:

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Your input will help us tailor the symposium to better meet your needs. Please take a moment to answer the following questions.

For how many years has your organization been funding research?

Does your organization currently support any of the following research studies or programs, either financially or with other resourcing? (Choose all that apply)

In Vitro (animal) ModelsIn Vitro Models (includes cell cultures, iPSCs, organoids)Biomarker Discovery or ValidationOutcome Measures for Clinical TrialsMultidisciplinary Clinics or Centers of ExcellenceResearch RegistryNatural History Study

Terms & Conditions

I agree to the collection of my personal information on the application form to register for and to receive communications about the 2025 RARE Drug Development Symposium.

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I consent to the use of my contact information to receive future communications from Global Genes with information that may be of interest to me regarding rare diseases, news and ohe events. You may unsubscribe at any time.

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I agree to follow the state Health and Safety guidelines as issued at the time of Global Genes' event based on the event location.

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For more information on the Global Genes Privacy Notice: Privacy Policy - Global Genes.

Registration Prices based on your Registration Type selected

Caregiver/Patient/Advocate - $275

Academia/Government/Healthcare Professional/Scientist/Researcher - $375

Corporate/Industry - $2,175

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Refund Policy Acknowledgment

Please note: All registrations are final and non-refundable. By submitting this form, you acknowledge and agree to the following:

1. No refunds will be issued for cancellations, no-shows, or changes in personal circumstances.

2. If you are unable to attend, you may transfer your registration to another person by notifying us at least 48 hours before the event.

3. In the event of cancellation by the organizers, a refund or credit may be issued at our discretion.

I have read and agree to the No Refund Policy.

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Advocate Support Travel Assistance (amount to be determined)

Advocate Support Travel Assistance is available to individual patients, close family and friends of advocates in the RARE disease community, or staff (paid/volunteer) of RARE disease nonprofit organizations or support groups. Travel Assistance can be used to cover air, ground transportation and lodging. Attendees are not eligible for travel assistance if they received assistance in previous years.

Please note: All registrations are final and non-refundable. Advocate Support Travel Assistance is not available for all attendees, therefore if you require the Support to be able to attend we encourage you to not register until you receive confirmation of the Support funds.
For more information click here.

Application for Advocate Support Travel Assistance (Applications are due by June 27th)

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