Attendee Information

Are you attending as a representative of a Global Advocacy Alliance Member Organization?

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Please select the organization below. If you cannot find your organization, type it in.

What is the name of the Global Advocacy Alliance Organization that you are affiliated with?

Your Title at Selected Organization

Account Id

GAA Account ID

In order to develop tools to empower our diverse rare community, we ask participants to please select the response that best reflects their race and ethnicity:

Other:

Terms & Conditions

I agree to the collection of my personal information for the purpose associated with the 2025 RARE Drug Development Symposium Participant section in the Privacy Policy.

I agree

By checking this box, I agree to follow the state Health and Safety guidelines as issued at the time of Global Genes' event based on the event location.

I agree

I hereby give my consent to Global Genes to photograph, film, videotape and then use, reproduce, and publish said images and/or audio of me taken during the 2025 RARE Drug Development Symposium.

I agree

I consent to share my contact information (Name, Organization) with other RARE Drug Development Symposium attendees on an attendee list. Please note only those who consent will receive the attendee list. We do not sell conference/participant information or user data.

I agree

I agree to receive future marketing communications from Global Genes. You may unsubscribe at any time.

I agree

Registration Prices based on your Registration Type selected

Early Bird Rate expires June 27, 2025

Caregiver/Patient/Advocate - Early Bird $195 / Regular $275

Academia/Government/Healthcare Professional/Scientist/Researcher - Early Bird $295 / Regular $375

Corporate/Industry - Early Bird $1,895 / Regular $2,175

Pre-Discount Registration Cost

Enter Discount Code if Applicable* (code is case sensitive)

Discount Amount

Total Registration Price

Refund Policy Acknowledgment

Please note: All registrations are final and non-refundable. By submitting this form, you acknowledge and agree to the following:

1. No refunds will be issued for cancellations, no-shows, or changes in personal circumstances.

2. If you are unable to attend, you may transfer your registration to another person by notifying us at least 48 hours before the event.

3. In the event of cancellation by the organizers, a refund or credit may be issued at our discretion.

I have read and agree to the No Refund Policy.

Payment

Credit Card Information

Total Payment

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Card Number

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Billing Email

Address Line 1

City

Country

State/Province

Postal Code

Advocate Support Travel Assistance (amount to be determined)

Advocate Support Travel Assistance is available to individual patients, close family and friends of advocates in the RARE disease community, or staff (paid/volunteer) of RARE disease nonprofit organizations or support groups. Travel Assistance can be used to cover air, ground transportation and lodging. Attendees are not eligible for travel assistance if they received assistance in previous years.

Please note: All registrations are final and non-refundable. Advocate Support Travel Assistance is not available for all attendees, therefore if you require the Support to be able to attend we encourage you to not register until you receive confirmation of the Support funds.
For more information click here.

Application for Advocate Support Travel Assistance (Applications are due by June 27th)

Yes, please send me an applicationNot interested

PLEASE NOTE:
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Thank you for your patience while your request is being processed.

Another Patient Advocacy Group	Family, Friend or Colleague
Global Genes Email/Newsletter	Global Genes Event or Conference
Other Event or Conference	Global Genes Social Media
Other Social Media	Global Genes Website
Global Advocacy Alliance	RARE Compassion Program (RCP)
RARE Concierge - Patient Services	RARE-X Research Program
Search Engine (e.g. Google)

Vegan	Vegetarian	Gluten Free
Lactose Intolerant	None	Other/Additional

Attendee Information

Accessibility Accommodations

Terms & Conditions