Symposium Live Stream Details
Wednesday, September 9 - Friday, September 11
All general sessions will be available to Live Stream via Zoom. 

Wednesday, September 9, 2026
9:30am - Welcome
9:45am - 10:55 am ET
Opening Fireside Chat: Parent-Led Drug Development: From Cell lines to Dosing Patients, The FOXG1 Story 
11:00am - 12:00pm ET
Session 1: Build it and They Will Come: Datasets that De-Risk Therapeutic Development and Attract Investment
1:45pm - 2:45pm ET
Session 2: Therapeutic Deep Dive: Synergies and Handoffs that Matter Most

Thursday, September 10, 2026
8:30am ET - Day 1 Recap
8:45am - 9:45am ET
Session 3: Successes & Lessons Learned from Recent Rare Disease Drug Approvals and Clinical Trials
9:45am - 10:15am ET
Session 4: Regulatory Update - Innovative Path to Therapy Development & Scalability
10:45am - 11:45am ET
Session 5: Market Access for Rare and Ultrarare Communities: We Can't Wait Until the Approval Comes
3:00pm - 4:00pm ET
Session 6: Reimagining Industry - Advocacy Collaboration in Drug Development
4:30pm - 5:30pm ET
Fireside Chat: Scaling N of 1 - A Collective Effort

Friday, September 11, 2026
8:45am - 9:15am ET
 - Keynote: Venture Philanthropy Redefined: Building Scalable, Sustainable Models for Rare Diseases

9:15am - 9:30am ET
Session 7: De-Rising Your Disease to Attract and Sustain Investment
9:30am - 10:30am ET
Pitch Session with Sophie's Hope Foundation and dada2 Foundation

Live Stream Pricing
Advocate/Caregiver/Patient: $45
Academic/Researcher/Government/Healthcare: $75
Corporate/Industry: $295


For questions about the live stream, contact events@globalgenes.org




















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Registration Prices based on your Registration Type selected
Caregiver/Patient/Advocate - $45

Academia/Government/Healthcare Professional/Scientist/Researcher - $75

Corporate/Industry - $295




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