Global Genes is proud to partner with the Termeer Institute to launch Leadership Lab, a full-day immersive experience for rare disease patient advocacy leaders.

Event Details

Wednesday, December 2, 2026
1:00pm - 8:00pm

Travere Therapeutics
3611 Valley Center Drive, Suite 300
San Diego, CA 92130

Visit the Leadership Lab website for updates.

For any questions or concerns, please email the Global Genes Events Team at events@globalgenes.org.

Attendee Information

First Name

Last Name

Email Address

Phone Number

City	State
Country

Please select your Registration Type.

Advocacy LeaderCorporate | IndustryOther

Other

Will you be attending on behalf of a patient advocacy organization?

YesNo

What is the name of your organization?

Your Title at Selected Organization

Account ID

Are you a member of the Global Advocacy Alliance?

YesNo

If you are not GAA member, learn more here.

Would you like to be considered for a travel stipend to attend the event? Travel stipends will vary based on need from $500 - $1,000.

YesNo

Not A Patient Advocacy Group

What is the name of your Company, Organization or Institution?

What is your current title or role?

In order to develop tools to empower our diverse rare community, we ask participants to please select the response that best reflects their race and ethnicity:

Other:

Terms & Conditions

I agree to the collection of my personal information on the application form to register for and to receive communications about the 2026 RARE Leadership Lab.

I agree

I consent to allowing Global Genes to photograph, film, videotape and then use, reproduce, and publish said images and/or audio of me taken during the 2026 RARE Leadership Lab.

I agree

I consent to share my contact information (Name, Organization) with other RARE Leadership Lab attendees on an attendee list. Please note only those who consent will receive the attendee list. Global Genes does not sell conference/participant information or user data.

I agree

I consent to the use of my contact information to receive future communications from Global Genes with information that may be of interest to me regarding rare diseases, news and ohe events. You may unsubscribe at any time.

I agree

For more information on the Global Genes Privacy Notice: Privacy Policy - Global Genes.

Registration Price

$150 per person

Pre-Discount Registration Cost

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Refund Policy Acknowledgment

Please note: All registrations are final and non-refundable. By submitting this form, you acknowledge and agree to the following:

1. No refunds will be issued for cancellations, no-shows, or changes in personal circumstances.

2. If you are unable to attend, you may transfer your registration to another person by notifying us at least 48 hours before the event.

3. In the event of cancellation by the organizers, a refund or credit may be issued at our discretion.

I have read and agree to the No Refund Policy.

Payment

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