Global Genes Interest Form
First Name
Last Name
Email Address
Which of the following best describe your role in rare disease? Select all that apply.
Academia
Advocate
Caregiver
Government
Healthcare Professional
Industry
Media
Patient
Scientist/Researcher
What are your diseases/disease areas of interest? Please add as many as apply.
Clinical Entity Id
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Which of the following are you interested in accessing?
2023 Corporate Alliance Prospectus
2023 RARE Advocacy Summit Prospectus
2023 RARE Health Equity Summit Prospectus
2023 RARE Drug Development Symposium Prospectus
2023 RARE Meet-Ups Impact Grant Prospectus
2023 RARE Mental Health Impact Grant Prospectus
2023 Health Equity in RARE Impact Grant Prospectus
2023 RARE Compassion Program Prospectus
2021 NEXT Report Interest Form
Diversity of Odysseys: The Diagnostic Challenges of Underserved People with Rare Diseases
FAIR - Partnering with State and Federal Representatives
FAIR - Understanding and Navigating Medicaid
FAIR Landscape Assessment
Fifth Annual Rare Drug Development Symposium (Hybrid)
Financial Advocacy in RARE: Navigating the U.S. Health System for Young Adults guide
Financial Literacy and Navigation In Rare Disease
Guiding Principles of Rare Disease - Access to Clinical Therapies
Patient Identification, Inclusion & Engagement for Rare CNS Disorders (PIE4CNS) Report
Rare Drug Development 2020 Report
Contact Information